Wednesday, March 22, 2017

Gomez's kidneys

When Gomez was 4 months old, he spiked a very fever in the middle of the night with no other cause. I called my mom to come over so we didn't have to wake Mars & take him to the ER with us. She came right over and off we went.

Gomez had no other symptoms. Just a high fever. So they sent us home and we followed up in the next day and week with trips to see his doctor and then specialists to find out what was going on.

It would turn out he had a kidney malformation of the ureters that caused a reflux that meant he would have chronic bladder and kidney infections. They put him on daily prophylactic antibiotics and waited to see if it would get better.

It didn't. So at 11 months, he had major kidney surgery.

Now I know many people who have kids with really serious illnesses and this is not that. All along we were fortunate and knew that this was a highly fixable and routine abnormality. I knew he'd be okay in time and with help.

Still, it's a lot to see your baby have his entire abdomen cut open. It's painful to watch your baby try to stand up and walk with 9 tubes coming out of him including an epidural. I'd never even had an epidural. It was terrifying to watch him not eat or drink because of the pain.

For the last 4 years, we've had ultrasounds for Gomez, first at four months to see how bad the reflux was, and again later at 10 months, then surgery, then more ultrasounds since to make sure the surgery was successful and to monitor the amount of scar tissue in his belly.

Every follow up ultrasound has come back with the doctor asking us to follow up in 6 months or a year. He's wanted to keep an eye on it. He's had concerns about the scar tissue.

This was the first one that Rob took Gomez in for. They got up and left the house at 7 this morning to take him to Denver to see how the scar tissue is doing, to be sure the ureters aren't leaking, to be sure he's okay. Meanwhile, Magnus and I had a special breakfast together at our favorite local spot. Then I dropped him at school, and went to work.

20 minutes ago, I got a text from Rob saying that Gomez is cleared. It's finally over. Gomez is fine.
I had no idea how much that little bit of worry existed. I didn't realize how much I worried that he could need to have additional surgery. I knew it was there but didn't think much of it, back there gnawing away at my stability until I read the text.

I literally can't stop crying from gratitude and relief. I think I might be worse at handling good news than bad news because I literally bawled at this news.

I wrote about his surgery in my book but the story wasn't really over until today. It's over. It's over. It's over.

What freakin' awesome news.

Amid my crying and celebrations, I received 2 additional texts from Rob.
#1 was a picture of the upcoming shows at a theater in Denver. We've been having an ongoing disagreement about whether you can refer to "Bone: Thugs in Harmony" as "Bone Thugs" which I argue is not okay and he says is. And they're coming to DENVER! So there was that picture.
and
#2 Gomez says his birthday is on the Fourth Bewakens.

So let's all celebrate by listening to bad 90s rap and eating cake. THE FOURTH BEWAKENS & I miss my uncle Charles, ya'll...